I was just diagnosed with celiac disease on July 15, 2009. In the few days since my diagnosis I have found finding accurate information for my new gluten-free diet challenging and frustrating.
There are 'gluten-free' product review blogs and 'gluten-free' product lists at some of my local grocery stores. Now, I just put gluten-free in quotes there for a reason. The clinical gluten-free diet for celiacs requires that food be prepared in a gluten-free dedicated facility. Many foods with 'gluten-free' labeling are processed in facilities and on equipment with wheat or other foods with gluten ingredients. That is not gluten-free. I am following the strict clinical gluten-free diet recommended for people with celiac disease. I have personally chosen not to risk eating those products, as they have a higher probability of cross-contamination with gluten.
My main reason for starting this blog is to keep track of what I have found. Which products are really gluten-free according to the clinical definition? Also, what websites do I need to remember to check out. What items do I need to remind myself to look up? Which companies responded to my emails and what did they say? What interesting things have come up (e.g. my handsanitizer has gluten in it)?
Right now this site is for me to keep my sanity as I try and keep track of everything. If it helps someone else that is amazing! Maybe further in my journey I will make an effort to promote it to help others who are following a strict gluten-free diet.
I am not a medical doctor and if you have celiac you should make decisions on your own with the help of a nutritionist and/or doctor about what you will eat. Ingredients change and a product I post may later become glutenized.
Hi, I was recently diagnosed with celiac disease as well. There are few gluten-free resources in my area, and I don't cook (but I'm learning). Fortunately my mom is a dietitian, and she does most of the celiac consults at the hospital where she works. I've started a food diary/blog, maybe we can encourage each other.
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